Enquête: schatting van het totaal aantal chronische Lyme patiënten in Nederland, wat denken jullie?

[VerlorengezondheidM]

Onder andere (de invloed van?) HIV ontkenners versus Lyme ontkenners, zie onderstaande link van Dovepress door dr. R.B. Stricker en M. J. Middelveen.

Bron: Dovepress, lees meer

Will history repeat itself or....

[Henriëtte]

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease;

WHO European data report a steady increase in Lyme disease cases over the past 2 decades, with >360,000 cases having been reported.7 This may represent an underreporting of true incidence, as suggested by Sykes, who reported 232,125 cases in 1 year in Western Europe.8 The CDC estimated >300,000 new infections per year in the United States – just for Lyme – one of the several tick-borne diseases.9 The CDC estimates do not take into account those cases that are not reported or are misdiagnosed as other medical conditions. In 2012,10 an estimated 0.3% of the United States population were diagnosed, in that year alone, with Lyme disease – well over 900,000 people.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5590688/

Henriëtte

[VerlorengezondheidM]

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease;

WHO European data report a steady increase in Lyme disease cases over the past 2 decades, with >360,000 cases having been reported.7 This may represent an underreporting of true incidence, as suggested by Sykes, who reported 232,125 cases in 1 year in Western Europe.8 The CDC estimated >300,000 new infections per year in the United States – just for Lyme – one of the several tick-borne diseases.9 The CDC estimates do not take into account those cases that are not reported or are misdiagnosed as other medical conditions. In 2012,10 an estimated 0.3% of the United States population were diagnosed, in that year alone, with Lyme disease – well over 900,000 people.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5590688/

Henriëtte

Ongeveer 3X zoveel?? ; bedankt voor je kritische, doch constructieve bijdrage in deze.

TOUCHED BY LYME: “Most serious undiagnosed health threat in existence”

Bron: Lymedisease.org, lees meer

[VerlorengezondheidM]

2009; naar schatting een half miljoen mensen lijden aan de ziekte van Lyme volgens de N.V.L.P.

Wanneer worden er in Nederland gespecialiseerde Lyme M.S.I.D.S ziekenhuizen uit de grond gestampt?

Kunnen wij als fatsoenlijke en ethisch bewuste Nederlanders anno 2019 eigenlijk nog wel van een goed beteugelde zeldzame infectieziekte van Lyme spreken?

In mijn berekening houd ik bij nader inzien vast aan de 60%
met aanhoudende klachten omdat ik vind dat ook de te laat en aanvankelijk misgediagnosticeerde chronische patiënten verdisconteerd moeten worden met de acute Lyme patiënten.

P. S. : Omdat chronische Lyme en co-infectie patiënten in de loop der tijd tot nieuwe en andere inzichten kunnen komen heb ik de stem button van de POLL op veranderbaar ingesteld.

Groetjes VGM

[VerlorengezondheidM]

Q-koorts: menselijk drama van meer dan tien jaar

Bron: https://nos.nl/nieuwsuur/artikel/225194 ... -jaar.html

Ongeveer 4000(+) Q-koorts patiënten in Nederland waarbij de uiteindelijke erkenning op grote! weerstanden is gestuit zoals aangespannen rechtzaken tegen de overheid, niet misteverstane beschuldigingen en andere onvriendelijkheden over en weer etc.

Bovenstaande in ogenschouw nemende; hoe denken jullie dat het dan met de uiteindelijke erkenning van chronische lyme en co infecties zal gaan van de ongeveer 500.000+ Lyme Co gedupeerden in Nederland?

'Wie het verleden niet kent, zal geen greep krijgen op de toekomst.'

Bron: https://www.nationaleombudsman.nl/nieuw ... -erkenning

[VerlorengezondheidM]

Nederlandse zorg: de beste van Europa

Bron: Trouw, lees meer

We worden bedonderd, Lymenet lees meer

[TheoA]

Nederlandse zorg: de beste van Europa

Bron: Trouw, lees meer

We worden bedonderd, Lymenet lees meer

Eens, met Lyme worden we bedonderd.

Er zou een Lyme expertise centrum komen. Maar dat is er helemaal niet. Er is slechts een vaag samenwerkingsverband.
Het beschikbaar gestelde geld (2,5 miljoen) is ingepikt door AMC (van Joppe Hovius) en Radboud (van Bart-Jan Kullberg).
Buitengewoon treurig ook dat de Stichting Tekenbetenziekten (van Diane Uitdenbogerd) hierin is meegaan.

De hoop is nu gevestigd op de NVLP, hopelijk kunnen zij in hun gesprekken met Kamerleden nog wat bereiken.

[VerlorengezondheidM]

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease;

WHO European data report a steady increase in Lyme disease cases over the past 2 decades, with >360,000 cases having been reported.7 This may represent an underreporting of true incidence, as suggested by Sykes, who reported 232,125 cases in 1 year in Western Europe.8 The CDC estimated >300,000 new infections per year in the United States – just for Lyme – one of the several tick-borne diseases.9 The CDC estimates do not take into account those cases that are not reported or are misdiagnosed as other medical conditions. In 2012,10 an estimated 0.3% of the United States population were diagnosed, in that year alone, with Lyme disease – well over 900,000 people.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5590688/

Henriëtte

Vraag aan Lyme expert dr. Richard Horowitz:

Q: What is it that’s creating the epidemic?

A: It’s because of the deer, but also the white-footed mouse, chipmunks, raccoons, foxes, moles, voles, the ticks are now even on birds. The reason it’s a worldwide epidemic is the ticks get on birds and they go to Canada, they go to China. When I was in China and I was speaking with their CDC … they told me privately 6 percent of the Chinese population had been diagnosed with Lyme.

Bron: http://www.mvlymecenter.org/2015/08/28/ ... ay-6-2015/

Meet the Lyme disease experts

Bron: https://lymeconnection.org/news_publica ... me-disease

[VerlorengezondheidM]

The Financial Implications of a Well-Hidden and Ignored Chronic Lyme Disease Pandemic

Marcus Davidsson

Approximately 63% [45,46] of people today that are infected with Borrelia, unfortunately, develop chronic Lyme disease.

Bron: NCBI, lees meer

[VerlorengezondheidM]

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease;

WHO European data report a steady increase in Lyme disease cases over the past 2 decades, with >360,000 cases having been reported.7 This may represent an underreporting of true incidence, as suggested by Sykes, who reported 232,125 cases in 1 year in Western Europe.8 The CDC estimated >300,000 new infections per year in the United States – just for Lyme – one of the several tick-borne diseases.9 The CDC estimates do not take into account those cases that are not reported or are misdiagnosed as other medical conditions. In 2012,10 an estimated 0.3% of the United States population were diagnosed, in that year alone, with Lyme disease – well over 900,000 people.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5590688/

Henriëtte

What Life With Lyme Is Like: Creating Awareness About America’s Greatest Pandemic
By Connie Strasheim

First, the Centers for Disease Control (CDC) estimates that there are over 329,000 new cases of Lyme disease every year in the United States alone, although these numbers are likely to be much higher; as much as one million per year, by some researchers’ estimates. This is because this statistic doesn’t account for the unreported and misdiagnosed cases, as well as many other factors. Yet Lyme disease is a worldwide pandemic, but remains improperly diagnosed because it mimics symptoms of other illnesses, such as Parkinson’s, Multiple Sclerosis, chronic fatigue syndrome, fibromyalgia, lupus, arthritis, and many others.

What’s more, conventional tests such as the Western blot and ELISA are unreliable, inaccurate and don’t detect most cases of Lyme. These tests look for antibodies to Lyme, but many people do not produce antibodies in the later stages of disease.

Bron: Prohealth, lees meer

Wederom 3X zoveel geschatte Lyme besmettingen (X30? jaar); rekenen, schatten en (her)stemmen jullie met mij mee?