Celebrities with Lyme Disease

[Roxy]

Bella Hadid Takes Center Stage At Last Night’s Lyme Alliance Gala. The evening raised nearly $3 million http://observer.com/2016/10/bella-hadid ... ance-gala/

The Hadid clan continued as the first family fighting against Lyme Disease last night at the second annual Lyme Alliance Gala held at Cipriani 42nd St, which came decorated masterfully by event mastermind Lawrence Scott. While Yolanda Hadid took center stage last year at the foundation’s inaugural benefit in the same venue, this year it was her daughter, supermodel Bella Hadid, who was honored.

“It’s really rude they make all the Lymies come up here and talk, because I can’t even talk in real life,” Ms. Hadid joked with a roll of her eyes as her high school classmates looked on from a front row table. Hadid recalled her teen years struggling with the disease that derailed a promising career in Olympic horse jumping, and how she is often perceived as simply a pretty face. “Life isn’t always what it looks like from the outside,” she added in closing. “The hardest part of this journey is to be judged by the way you look, instead of the way you feel.”

Bella’s former step father, and ex-husband to Yolanda, music magnate David Foster was scheduled to provide the evening’s entertainment alongside crooner Rob Thomas, but canceled last minute, leaving Thomas to preform solo. The crowd also included designer-turned-author Ally Hilfiger, daughter of Tommy Hilfiger, who recently chronicled her struggle with Lyme Disease in a memoir wittingly titled “Bite Me,” which served as everyone’s parting gift for the evening. Two tickets to her father’s next runway show were later sold during the evening’s live auction for $100,000 to a lucky donor duo.

[VerlorengezondheidM]

'FOX 5 Special: LYME & REASON'

Bron: YouTube see this video

[VerlorengezondheidM]

'It's three times more prevalent right now': Yolanda Foster shockingly compares Lyme Disease to HIV during presser in Sydney

Bron: Dailymail lees meer

[VerlorengezondheidM]

19 celebrities who have struggled with Lyme disease

Ashley Olsen
ashley olsen lyme disease
(via examiner.com)
Former actress-fashion entrepreneur Ashley Olsen is the latest celebrity, since Lavigne’s own announcement, to be reported to have a chronic case of Lyme that may have been the cause, at least partly, for her retreat from the public eye since 2012.

According to RadarOnline.com, an anonymous insider has stated that Olsen’s condition is progressively getting worse:

“Her symptoms have gotten worse… She’s had to take a step back from her business. She used to be in the office all the time, but lately she’s often just not well, so she rests a lot at home. She’s really having a difficult time. […] She’s really struggling, and it comes out in anger — she’s at the point where she’s having a hard time dealing. She just seems all-around cranky. Between her pain and her exhaustion…”

Debbie Gibson
debbie-gibson-lyme
(via pe.opel2015.com)
One celeb who has been quick to publicly offer her sympathies and support to Lavigne is Debbie Gibson who was diagnosed with Lyme in 2013. In her own interview with People (which is, intentionally or not, becoming one of the media outlets most helpful to Lyme awareness), Gibson talked about some of the pain and cognitive difficulties that often afflict those with Lyme:

“My back kept going out, I couldn’t lift my head sometimes. My boyfriend said I was mixing up words in my texts. It really got into my cognitive skills. I took crazy amounts of antibiotics, including doxycycline. It killed so much stuff in my body that I became a shell of myself.”

Although People reported last year that Gibson has made dramatic improvement, her tweet to Lavigne suggests she’s not entirely out of the woods yet. debbie-gibson-avril-lavigne-lyme-tweet

Neneh Cherry
neneh-cherry-lyme-disease
(via gigslutz.co.uk)
Another musician to have had Lyme is Neneh Cherry, though there is far less media coverage of her experiences that can be easily found online. The singer came down with it back in 1989 shortly after the release of her breakout album Raw Like Sushi. At the time, far less was widely known about the disease that some people called it the “Neneh Cherry Disease.” Based on her Twitter account feed, and the level of public performances, it seems reasonable to assume that either she has been mostly cured or has it under enough control to live a functional life.

Kathleen Hanna
Kathleen-Hanna-lyme-disease
(via makers.com)
One can only hope that Lavigne will be as much an activist for Lyme awareness as punk singer Kathleen Hanna has been. Hanna, who was diagnosed with late stage Lyme in 2005, has been struggling with the illness on an ongoing basis, even cancelling a planned 2014 tour to focus on treatment. “Late stage Lyme disease has wreaked havoc in my life and stolen much of my career,” she has said. She also told KQED that life in recent years has been more about “living day to day.” Her fight with Lyme has been partly documented in the film The Punk Singer. She recently also did the #LymeDiseaseChallenge which, modeled after the ALS ice bucket challenge, seeks to raise money and awareness for Lyme research.

Daryl Hall
daryl-hall-lyme-disease
(via pitchfork.com)
“It can make you wanna die if you’re not dead,” Daryl Hall of the band Hall & Oates has said of the Lyme experience. He has also said that the lack of widespread recognition of the severity of chronic Lyme (as opposed to just acute Lyme) is “almost a bad joke” to anyone who actually suffers from it. Hall was diagnosed with Lyme in 2005, causing him to cancel a Hall & Oates tour that year. As with Amy Tan (see below), he has become a vigorous and outspoken critic of the medical establishment’s approach to Lyme and has spoken about it repeatedly whenever he has appeared on his friend Howard Stern’s radio show.

Yolanda Foster
yolanda-foster-lyme-disease
(via yolanda.com)
In a recent interview with Bravo‘s Daily Dish, Yolanda Foster said, “”I took Avril under my wing when she first got sick and shared all I know… I am so proud of her for going public and helping us bring awareness to this debilitating disease.” Apparently, Lavigne and the star of Real Housewives of Beverly Hills have been friends for a number of years, the singer even performing at Foster’s wedding in 2011. Aside from being a mentor to the afflicted Lavigne, Foster has helped raise awareness of Lyme through her social media presence, openly posting pictures of herself in the hospital getting treatment on Instagram and such.

Richard Gere
richard-gere-lyme-disease
(via telegraph.co.uk)
Richard Gere is an example of a very successful case of early Lyme detection and treatment. The actor had to postpone filming Autumn in New York in 2000 with Winona Ryder while resting and taking a course of antibiotics. Sources indicate that he made a full recovery with no chronic symptoms, but the experience did not leave him unscathed:

“This is one scary disease. I felt as though every ounce of strength had gone from my body… Just turning my head to see the time on the clock was a major operation. I felt as if my life was going in slow motion.”

Ben Stiller
ben stiller lyme disease
(via shalomlife.com)
Ben Stiller was tentatively diagnosed with Lyme in 2010 when a lingering knee injury became increasingly painful and wouldn’t go away. That he didn’t complain of other symptoms suggests that it didn’t become late stage, chronic Lyme. In a 2011 interview with The Hollywood Reporter the actor said that he was treated and was now symptom free.

Parker Posey
parker_posey_lyme_disease
(via cinemablend.com)
Actress Parker Posey was diagnosed with Lyme in 2009 and had to drop out of a stage production at the time. Posey has famously championed alternative treatment modalities for Lyme after a standard round of antibiotics did not eradicate her symptoms. She became part of a documentary film called Rethinking Cancer which profiles five cancer patients and one Lyme patient (Posey) who have made successful progress and defied pessimistic prognoses from their doctors through various alternative treatment methods.

Karen Allen
[youtube link=”https://www.youtube.com/watch?v=2tNMghDhnWk” width=”590″ height=”315″] The erstwhile companion to Indiana Jones has called Lyme “a devastating disease that has reached epidemic proportions,” an assessment supported by various Lyme literate doctors like Jane Marke, MD, who has compared the severity of the illness to AIDS. Like Posey, Karen Allen has promoted the use of alternative medicine to treat Lyme and has been a public advocate for Lyme awareness as in the public service announcement video above.
Jamie-Lynn Sigler
jamie-lynn-sigler-lyme-disease
(via parade.com)
The former Sopranos actress became sick with Lyme while filming an indie film called Campfire Stories in 2000. As with Gere, her infection was detected early and she was able to recover using antibiotics but she has said, “It was such a life-altering experience… I realized it could all be taken away in a moment. It’s hard to explain…” Jamie-Lynn Sigler has also written about the experience in her memoirs Wise Girl: What I’ve Learned About Life, Love, and Loss.

Jane Alexander
jane-alexander_lyme_disease
(via pinterest.com)
Tony Award winner and two-time Emmy Award winner Jane Alexander believes she has had Lyme disease twice, though the ability for the disease to be dormant at least suggests that perhaps it had never been fully eradicated to begin with. She became involved with a 2008 documentary film called Under Our Skin which sought to educate the public about the illness. In 2009 it became a semi-finalist in the Academy Awards for Documentary Feature, though it did not go on to be nominated.

Christy Turlington
christy_turlington_lyme_disease
(via celebritybase.info)
The Calvin Klein model and humanitarian contracted Lyme in 2007 but it was spotted early and successfully treated using a course of antibiotics. There has since been no public indication or mention of it having affected her life in recent years.

Jennifer Capriati
jennifer-capriati-lyme-disease-2
(via craigwarga.com)
International Tennis Hall of Fame inductee and three-time Grand Slam winner Jennifer Capriati revealed she had Lyme in 2013 on Twitter. She stated that she has probably had it in her system for some time before the diagnosis and believes it may have even been the cause of her tennis-related injuries and subsequent emotional distress (over the past few years Capriati had been involved in a number of incidents involving drug overdose and charges of stalking her ex-boyfriend, Ivan Brennan Jr., which were dropped after she completed a course of community service and anger management counseling). Since her announcement she has been open on Twitter about how difficult the illness has been and the irony of how much work it takes to address it while in such an exhausted state: jennifer-capriati-lyme-disease

George W. Bush
george-w-bush-lyme-disease
(via ktla.com)
Regardless of whatever one may think of his presidency, G.W. Bush was nevertheless a high profile case of Lyme. Back in 2007, the White House disclosed that former president Bush had been treated for Lyme in 2006. It had been detected early and eradicated, but the details of Bush’s treatment protocol were not divulged. This did not go unnoticed or without controversy. In an op-ed piece, The Guardian wondered aloud what the secrecy was necessary for. Their concern was valid. For instance, insurance companies typically do not pay for the treatment of Lyme beyond two weeks even though tens of thousands of patients in the U.S. complain of lingering and/or worsening symptoms long after the covered treatment they are initially given. This means that patients have to resort to paying out-of-pocket if they want to continue treatment, a situation compounded by the fact that many of them are unable to work. If Bush had been treated beyond the usual two-week regimen taken for granted by the mainstream medical and insurance industry, then it would call into question the practice of denying coverage to insured Lyme patients beyond just two weeks.

Rebecca Wells
rebecca wells lyme disease
(via rebeccawellsbooks.com)
We end this list with a trio of writers. And perhaps because their chosen medium is the written word, their shared experiences are often the most detailed and eloquent. Rebecca Wells was struck down by Lyme shortly after her rise to fame with Divine Secrets of the Ya-Ya Sisterhood. Her symptoms included dizziness, hyperacusis (acute sensitivity to sound), respiratory issues and multiple chemical sensitivity in which even a whiff of perfume became unbearable. She saw 12 doctors over seven years before finally being diagnosed in 2004. Since then she has found value in living a simple, quiet life and found that she was able to resume writing when she focused her energies wisely. In spite of her challenges Wells has done quite well for herself, finishing two books since being stricken with Lyme—Ya Yas in Bloom and The Crowning Glory of Calla Lily Ponder—and has offered the following kernels of wisdom on her blog:

“Illness and the love I have been given have taught me about the need for tenderness. I know more deeply that we all need more compassion and kindness than this fast, consumer-driven world encourages.”

And:

“I’m trying to take everything one day at a time. To wake up every day and play the hand I’ve been dealt as best I can. I’m discovering what we all have to learn eventually: that attitude, not external circumstances, is what determines happiness.”
Alice Walker
Alice-Walker-lyme-disease
(via charterforcompassion.org)
Alice Walker is self-diagnosed as having Lyme, but the self-diagnosis of any reasonably intelligent individual who has done her research is arguably valid given the mind-boggling amount of time, money, effort and stress often involved in finding a doctor willing to simply take the right kinds of tests. On her blog, the author of The Color Purple has written about how her symptoms manifested themselves at a time when there were already numerous other stress factors causing strain in her life:

“[It] brought me to my knees. At the same time critics pilloried me: my work, it appeared, severely offended them. Moreover, my love life crashed around my feet. Still, one day, after years of being under a cloud of sickness and censor, I realized I was not only rising from my ashes, but shining. From that time to this I’ve lost the need for lengthy prayers. I have only one, but it is constant. Thank You, I say, before eating, working, moving. Loving. Thank You. It is enough.”

In other words, her entire life came crashing down around her, but it was in the midst of such ruin that she found grace.

Amy Tan
amy_tan_lyme_disease
(via onpoint.wbur.org)
The author of The Joy Luck Club has written extensively about her experiences with Lyme on her official site and in articles like this one for The New York Times. As with her colleague Wells (see above), Amy Tan’s symptoms included pain, fatigue, nausea, depression, hypersensitivity to sound and smells, blood sugar instability and cognitive impairment. “I could not read a paragraph and recall what it said,” she once wrote. “I wrote in circles, unable to tie two thoughts together, never mind the plot of a novel.” After four years of searching, 11 doctors and $50,000 spent in medical bills, she found a Lyme literate doctor in 2003 and has since gotten her life back but is still not completely cured. Admirably, using her gifts with language she has become a visible advocate for Lyme awareness and research:

“Ten years have passed since I was diagnosed, yet little has changed in the way medical schools, H.M.O.’s, private practitioners and insurance companies view the disease. It is still frequently misdiagnosed and patients with chronic suffering remain overlooked… We need to revise the [medical industry’s] guidelines based on new research and the plight of those who have suffered from the disease, some of whom have lost their jobs, their homes, their marriages and even their lives.”

Amen to that, Amy.

Bron: http://www.popmythology.com/15-celebrit ... e-disease/

[Roxy]

She's back! Avril Lavigne announces new music in 2017 after a two-year battle with Lyme disease http://www.dailymail.co.uk/tvshowbiz/ar ... sease.html

De Morgen
27 december 2016
Na lange strijd tegen ziekte van Lyme duikt Avril Lavigne de studio weer in http://www.demorgen.be/muziek/na-lange- ... -b325b449/

[Roxy]

Floortje Dessing
Omproepvrouw van het jaar 2016 http://www.ad.nl/home/floortje-dessing- ... ~ae8bf00e/
Goed gedaan en super verdiend !

[VerlorengezondheidM]

New Yorkers Call Lyme Disease the New Plague

"It's a plague! It really is," asserted Howard Stern in an interview with Daryl Hall, who suffers from Lyme disease along with his wife and two step-children. "A lot of people don't know this, but it's a serious problem." Stern went on to say, as Hall agreed, that Lyme disease is a plague. As two New Yorkers who are surrounded by whole communities being struck with the disease, Stern and Hall are not alone in recognizing that Lyme disease is the silent epidemic that's taken over their city.

Jane Marke, MD believes that Lyme disease is the new AIDS epidemic in New York. "I encounter so many people here who either have Lyme disease or have a family member afflicted with the disease. It's become a serious issue, but nobody is talking about it," Marke said.

Actress Karen Allen (Raiders of the Lost Ark), who was struck with Lyme 12 years ago, describes the scope of the problem. "I hardly know anyone whose life, their own or family members, is not being impacted by Lyme disease," Allen said. "It is a devastating disease that has reached epidemic proportions. We must report accurately on the scope of Lyme and other tick-borne diseases."

Desperate Lyme patients who have been crippled by the disease gathered in front of The New York Times building in Manhattan on September 17, to call for greater coverage of the Lyme disease pandemic. Over 150 people including 30 wheelchair users lined the sidewalks. Activists traveled from Quebec, Missouri, Texas, Washington State, Washington, DC, and surrounding Northeastern states. Patients held a silent, candlelight vigil, to shed light on the silent epidemic and invisibility of the disease. Signs were held saying, "Lyme Disease is a Pandemic. Where's the Coverage?" and "Silence Won't Stop an Epidemic."

Bron: http://www.truth-out.org/news/item/2639 ... new-plague

[Roxy]

NashvilleTV http://www.nashvilletv.nl/2017/04/28/sh ... -van-lyme/
Shania Twain

Shania Twain’s stemverlies komt door de ziekte van Lyme

In 2011 onthulde Shania Twain in een gesprek bij Oprah Winfrey dat ze lijdt aan dysphonia, een aandoening die ervoor kan zorgen dat de stembanden van een persoon worden vergroot tijdens het spreken of zingen.

Shania dacht dat de problemen ontstaan waren door een aantal traumatische gebeurtenissen in haar leven, nu blijkt echter dat de oorzaak ligt bij de ziekte van Lyme.

In een interview met The Los Angeles Time zegt ze dat haar stemverlies te wijten is aan de ziekte van Lyme en dat haar stemverlies anders is dan de aandoening waar artiesten regelmatig aan lijden, knobbeltjes op hun stembanden.

“With nodules, you can’t speak; you’ve got to rest, rest, rest”, Twain tells the newspaper. “With mine, you’ve got to work, work, work”.

[VerlorengezondheidM]

Yolanda Foster Talks Lyme Disease And RHOBH Reunion; Reveals She’s Battling Another Infection From A Baby Cow
April 1st, 2015

Yolanda shared that her health journey goes well beyond Lyme disease. You see, she also suffers from Q fever, an infection she developed from caring for a chin-sucking cow when she was 12.

“A late stage chronic Lyme disease patient probably does not just have Lyme disease. Unfortunately, this situation is like peeling a onion with many layers of problems,” explained Yolanda. “I won’t bore you with the details of my diseases collected throughout my life journey of 48 years until the day I got sick now almost three years ago. One funny story gives you a sense, though, of the long-term journey. At 12 years old, I raised a premature baby cow on our farm, because her mom had died. I bottle-fed it everyday, let it suck on my chin, and babied it until it was stable. I just recently found out that my little love gave me Q fever that has been a low-grade infection throughout my entire life.”

Lees meer
Lees meer (google Nl) Bron: RealityTea

Dat wist ik helemaal niet dat Yolanda Foster ook Q-koorts heeft; erg bedankt voor het delen van de informatie in ieder geval.

Lyme werd Kelly Osbourne bijna fataal

De ziekte van Lyme waar Kelly Osbourne al sinds 2004 aan lijdt, werd haar in het verleden bijna fataal.

Kelly vertelde eerder deze maand dat ze de ziekte opliep door de beet van een teek tijdens een bezoek aan een rendierenboerderij in Engeland. Ze deed de onthulling in haar autobiografie There Is No F*cking Secret: Letters From A Badass Bitch.


Ze maakt zich er in het boek druk over dat de ziekte "trendy" is geworden en veel sterren zich voordoen als "zielig slachtoffer". "Het stoort me want dit is een echte ziekte. Ik was er bijna aan onderdoor gegaan en ik wil dat mensen er meer over weten."

De dochter van Ozzy is in haar memoires ook open over haar verslaving aan pijnstillers. Ze liet zich daarvoor vier keer opnemen in een afkickkliniek. Kelly is nu acht jaar clean en hoopt met het boek andere mensen die kampen met een verslaving een hart onder de riem te steken. "Ik hoop dat mensen zich hierdoor realiseren dat ze niet de enige zijn."

Bron: Telegraaf

[Roxy]

Boek Yolanda Hadid 'Believe Me: My Battle with the Invisible Disability of Lyme Disease' 12 september 2017 https://www.amazon.com/Believe-Me-Invis ... 1250121655
'Your Sick Card is Up' Yolanda Hadid shares how difficult marriage and chronic illness can be. bron https://themighty.com/2017/07/yolanda-h ... =Lyme_Page