Zijn er ervaringen met de Phelix Phage Borrelia test?

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Ma 09 Nov 2020, 21:02

dr Louis Teulières is werkzaam als medisch directeur bij een nieuwe kliniek 'Revive Clinic Algarve'; Bron http://reviveclinicalgarve.com/
Revive Clinic is the place for those who have seen their quality of life seriously diminished by chronic conditions caused by multi-system diseases such as chronic lyme, ME/CFS, Post COVID-19, auto-immune disease and fibromyalgia. All of these conditions have similar underlying health problems and require a comprehensive approach to detox and revitalize your body. Revive Clinic helps its guests in their recovery process to get better, feel stronger and regain balance. Your journey at our clinic will be guided with compassion and care to improve your well-being.
Dr. Teulières co-founded the Charity PHELIX, that is dedicated to the research and development of phage-based diagnostics and treatments and has partnered with world-class healthcare professionals and researchers from the University of Leicester. Since 2003, he has been in private clinical practice in Paris and Lisbon focusing on treatment of immunological and chronic inflammatory and neurodegenerative diseases.

Nederlandse oprichter
..For twenty years I worked as a lawyer at various law firms and companies, as well as running my own company for ten years..

..Luckily a friend recommended a doctor in Belgium early on in my journey, who diagnosed me with chronic lyme. From that moment on, I have made it my mission to cure myself and have tried everything to heal. In the past 5 years I have experienced 2 periods when I thought I had fully recovered, but unfortunately I relapsed both times. I also never fully made it back to work and was eventually laid off due to my absences during a reorganization. Although this was of course a setback, it gave me the opportunity to ask myself what my next steps were going to be. The answer came quite naturally. Over the course of my illness, I spoke with numerous fellow patients who were experiencing similar medical issues and continued to suffer without proper medical guidance from doctors. I realized I was very privileged to have access to a doctor abroad who could answer my questions and who actually treated me holistically. I also had the opportunity to go to my doctor’s clinic abroad twice for three-week retreats and experienced how it benefited me – not only physically but also mentally. It made me stronger and made me realize I had to make the best out of my life within the limits of my disease..

..Most patients in the Netherlands, Europe and the US don’t have such luck. I found this harsh reality of a lack of medical care hard to accept, especially for children confronted with this disease or any other multi-systemic disease..As a result, I decided that I wanted to help fellow patients and volunteered as a board member with the ME/cvs Vereniging. This is a Dutch association looking after the interest of people with ME/CFS, which has a strong overlap with patients suffering from chronic lyme and other multi-system diseases. Although this volunteer work is very rewarding, most of it focuses on long term goals, particularly getting biomedical research started in the Netherlands. As I am not a very patient person, I also wanted to do something more concrete for individual patients. So when I heard that my doctor’s clinic had closed, I knew that this left a gap that needed to be filled. I realized that with a recovery clinic I could truly make a difference for patients, as I had personally experienced it..
Het lijkt een nieuw gat in de markt te zijn? Het ziet er allemaal mooi uit maar het zal erg kostbaar zijn. En voor de meeste Lyme en chronische Lyme patiënten of de me/cvs patiënten zal het financieel niet haalbaar zijn om naar de 'Revive Clinic Algarve' te kunnen gaan voor een behandeling.
Ik vraag mij af of het een samenwerking is met de bekende Ilads Lyme artsen uit Europa is. En er een samenwerking is met Biologix Center?; Bron https://www.facebook.com/BiologixCenter/
Biologix Center for Optimum Health - There is no one else doing this study in the U.S., although we are attempting to set up participating studies in France, England, and Portugal.
Our Founder and Lead Innovator, Dr. David Jernigan, will be attending the ILADS Annual Scientific Conference this weekend. He is especially excited to hear new research presented by Louis Teulieres and Tanja Mijatovic of the R.E.D. Laboratory in Belgium delineating results from the newest and most sensitive Lyme test, the Phelix Phage Borrelia test-the very test we use at the Biologix Center For Optimum Health use to confirm Lyme diagnosis-and Borrelia elimination following Induced Native Phage Therapy-due to its extreme sensitivity.
Biologix Center for Optimum Health - until the INPT research is completed and published it is only available at the Biologix Center, although new research locations are being set up in France, England, and Portugal.

Weinig patiënten zullen zo fortuinlijk zijn om kostbare behandelingen van €10.000 - €30.000 (of meer) te kunnen betalen.
Bron: https://louisteulieres.com/ A Dutch patient, suffering for a long time from CFS/ME, after several months of treatments prescribed by Dutch, Belgian and German colleagues, went to rest in the Algarve (southern region of Portugal), very close to Faro. She discovered a pleasant climate, healthy food (fish, fruit vegetables, all fresh), the benefits of the sea as well as a fitness therapist. Previously, she had spent time in Germany and Slovenia for massage, phyto and vitamin therapy treatments. She had the idea of ​​combining these two experiences in order to offer medical stays that take the best of what she has been able to experience.

Having met her during a medical conference in Faro, she asked me to ensure the medical supervision of these stays and to build a medical team with her. The clinic also offers yoga classes, physiotherapy sessions, physiotherapy, fitness and relaxation sessions. Visit the site for more details.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Di 10 Nov 2020, 15:16

In het 'medisch toerisme' valt er veel geld te verdienen?

Revive Clinic Algarve; Bron http://reviveclinicalgarve.com/contact/
Travel Information
Revive Clinic Algarve is located at the Pine Cliffs Resort in Albufeira.
Maré at Pine Clifs reopens renovated; Bron https://www.pinecliffs.com/en/blog/mare ... renovated/

Algarve looks to reinvent itself; Bron https://www.portugalresident.com/algarv ... nt-itself/
Announced at the event was the launch of Revive Clinic, an Algarve clinic that will treat people suffering from Lyme disease, an infectious disease caused by the Borrelia bacterium which is spread by ticks.

It is being launched by Dutch lawyer Ieke van Doorn, a Lyme disease patient who is committed to helping people who suffer from the same ailment as she does.

“At the start of this year, I met with a team of doctors and health professionals about the possibility of moving forward with this project. After taking into account some statistics and factors, I quickly decided that I wanted to open my clinic in the Algarve,” van Doorn explained.

The idea will be that people from all over Europe will be able to seek treatment at the clinic, which is expected to open by the end of 2019. Further details are being kept under wraps for now.
«Novos Mercados para Novos Tempos» debatidos em Vilamoura; Bron https://www.barlavento.pt/destaque/novo ... -vilamoura
Chronic Lyme
Tick-borne infections are increasing globally – Lyme disease is among the most prevalent vector-borne diseases in the US and Europe and is reaching levels of an epidemic. This most widely known tick-borne disease is caused by Borrelia bacteria. Besides Lyme, most ticks also transfer a number of coinfections. Epidemiologic studies demonstrate that 30-50% of Lyme patients go on to develop a multi-symptom disorder resembling, and often indistinguishable from, fibromyalgia and/or chronic fatigue. Chronic Lyme disease exhibits a variety of symptoms that may also be confused with immune and inflammatory disorders.
ME/CFS
Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) is a complex, chronic multi-system disease that can present itself in the form of an array of symptoms that may change over time and differ from patient to patient. The most common symptoms of ME/CFS are post-exertional malaise (fatigue after physical/mental effort), unrefreshing sleep (still tired after waking up in the morning), profound fatigue (feeling very tired without cause), cognitive impairment (brain fog, memory loss), chronic intestinal issues, orthostatic intolerance (dizziness when getting up), and pain (mainly in muscles and joints).
Een opmerkelijke combinatie met de ziekte me/cvs en de functie van algemeen bestuurslid mecvs vereniging. Wel pijnlijk dat dit initiatief voor menig mecvs (Lyme) patiënt financieel niet haalbaar is. Veel mecvs (Lyme) patiënten zijn in een uitkering en in de armoede beland. Het initiatief is enkel weggelegd voor de mensen met veel geld.
Patiënten als Hugo of Anil; Bron https://twitter.com/anilvanderzee liggen al jaren lang in een donkere kamer verstoken van alle (medische) zorg en de verschillende kostbare behandelingen die zij hebben gedaan hebben niet geholpen; Bron https://nl.helpsavehugo.com/f-a-q en Bron https://www.youtube.com/watch?v=YEswWhq5Cl4 en Bron https://www.youtube.com/watch?v=jfvewg54k1w De verschillende Ilads Lyme & me artsen hebben hun handen er vanaf getrokken en de patiënten in de steek gelaten.

De woorden van de oprichter van 'Revive Clinic Algarve' dat zij mensen uit heel Europa wil helpen klinken mooi maar het gaat duidelijk om een verdienmodel waar veel geld mee zal worden verdiend.
Hopelijk gaat de medisch directeur de patiënten vooraf goed testen voordat er met de detox en de infuus behandelingen wordt gestart. De patiënten (voorbeeld Hugo) waarbij de organen (lever, nieren, darmen) de afvalstoffen niet goed (meer) kunnen afvoeren kunnen érg ziek worden.
The treatments we offer include intravenous therapies that will detox your body, treat nutrient deficiencies and support your healing journey. IVs and injections containing vitamins, minerals, antioxidants and other nutrients can often be the turning point to start a reversal of symptoms for those with chronic illness, or a boost for those looking to optimize their health and general well-being. If you cannot or do not wish to be treated with IV we have oral substitutes available. Oral supplements may also be used to complement your IV treatments.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Do 12 Nov 2020, 15:25

Portugal resident
27 augustus 2019
Algarve bids to become ‘Mecca’ for wellness travel industry; Bron https://www.portugalresident.com/algarv ... -industry/
The Algarve could be transformed into a ‘Mecca’ for health and wellness travel, benefiting from major investment linked to the booming €600 billion global industry, according to the organisers of the 2019 Algarve Tourism Conference.
Other high-profile participants include ..Revive Clinic Algarve..
Bron https://louisteulieres.com/ Co-founder of the Bacteriophage research charity Phelix.
Dr. Teulières co-founded the Charity PHELIX, that is dedicated to the research and development of phage-based diagnostics and treatments and has partnered with world-class healthcare professionals and researchers from the University of Leicester. Since 2003, he has been in private clinical practice in Paris and Lisbon focusing on treatment of immunological and chronic inflammatory and neurodegenerative diseases.
dr Louis Teulières hoopt op goede verdiensten met de 'Revive Clinic Algarve' en met de 'Phelix Phage Borrelia test'?

Stand van zaken over de lopende procedure patent(octrooi) aanvraag bij het European Patent Office (EPO) is:
De patent(octrooi) aanvraag is in behandeling. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.

Stand van zaken: 15 september 2020 - Reply to communication from the Examining Division

Namens de wetenschappers en uitvinders Jinyu Shan & Martha Clockie en Louis Teulières heeft de gemachtigde (advocaat octrooirecht) bij de onderzoekscommissie van het European Patent Office (EPO) als voorzorgsmaatregel een voorlopig verzoek om mondelinge behandeling (oral proceedings) ingediend voor het geval dat weigering van het verzoek in elk stadium van de procedure wordt overwogen.

Overview of the procedure for the grant of a European patent (oral proceedings); Bron http://documents.epo.org/projects/babyl ... ess_en.pdf
Er is nog geen mondelinge behandeling/video conferentie (oral proceedings) ingepland in de agenda van het European Patent Office (EPO).
Interessant is de discussie over de 'novelty' (nieuwheid); Bron https://www.epc.nl/blog/top-3-eisen-voo ... dwars-ligt van de uitvinding en wat de bevindingen van de onderzoekscommissie van het European Patent Office (EPO) zullen worden op de aanpassingen en de correcties/rectificaties (gewijzigde claims) die namens de wetenschappers en uitvinders Jinyu Shan & Martha Clockie en Louis Teulières zijn ingediend door de gemachtigde (advocaat octrooirecht) op 15 september 2020. En daarmee wel of niet kunnen voldoen aan de voorwaarden van het EPO.
Nieuwheid
Uw uitvinding moet nieuw zijn. Dat betekent dat patenten alleen worden verleend voor uitvindingen die voor de indieningsdatum van de octrooiaanvraag nog niet bij het publiek bekend waren, waar ook ter wereld.

Lezing dr Louis Teulières Conferentie Dublin 26-27 september 2020; Bron https://www.iddoctor.eu/docs/Crypto-Inf ... Europe.pdf
Part 2: Discussion
B. miyamotoi resistance to antibiotics, heat and climate factors, and predominant information exchange via plasmids may explain the greater prevalence of miyamotoï type persisters
Is dit juist en is daar over gepubliceerd? Opmerkelijk is dat de (mecvs en Lyme) patiënten die bij de Ilads Lyme artsen in Europa of in Nederland met de 'Phelix Phage Borrelia test' een positieve uitslag B. miyamotoi krijgen met een combinatie van verschillende antibiotica en disulfiram en of dapsone worden behandeld.

In 2020 blijken mecvs patiënten na jaren lange behandeling met de 'Phelix Phage Borrelia test' (niet gevalideerd, in een lopend (wetenschappelijk) onderzoek) ineens Borrelia en of B. miyamotoi/Relapsing Fever te hebben?; Bron https://www.healthrising.org/blog/2020/ ... eriophage/
..My wife has been ill for over seven years. She has done countless urine, feces, blood, breath, hair and saliva tests – effectively every available type of laboratory test across two continents. This included tests for Lyme and other tick-borne diseases with a specialist laboratory in the United States (ELISA, Western Blot, PCR, etc.)..

..In March, my wife tried a newly developed blood test for bacteria of the borellia genus by Phelix. The result was *positive* for Borrellia miyamotoi (one of many “cousins” of Borellia burgdorfi, the well-known bacteria that causes Lyme disease)..

..Her test results have shown some abnormalities (e.g., gut dysbiosis, abnormal metabolites, poor mitochondrial function, adrenal insufficiency, impaired T4 to T3 conversion, etc.), but never a pathogen. Like so many people with ME/CFS, she has a complex illness without a clear origin – if only she had an identifiable “bad bug” to explain it all!..

..Her doctor indicated that this pathogen could explain her very severe ME/CFS symptoms. We could hardly believe it!..

..I have learned that the new blood test is a break-through for the tick-borne illness community – and may also be a break-through for some ME/CFS patients..

..Unfortunately, it is very difficult to rid a body of tick-borne bacteria: patients describe months and years of grueling IV and oral antibiotic treatments. Yet we are encouraged by recent trials that have had positive results on defeating “persistent” bacteria based on off-label uses of existing drugs (c.f. dapsone and disulfiram)..

..After years of searching, I am hopeful that this is a big step towards understanding and solving my wife’s very severe ME/CFS..
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Do 19 Nov 2020, 16:36

PE01662: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases
Janey Cringean and Lorraine Murray on behalf of Tick-borne Illness Campaign Scotland; Bron https://www.parliament.scot/GettingInvo ... ymedisease

Tick-borne Illness Campaign Scotland; Bron http://www.ticscotland.org.uk/

6 oktober 2020 - PE1662/OO Petitioner submission of 6 October 2020I; Bron http://www.parliament.scot/S5_PublicPet ... 662_OO.pdf
The Phelix Phage Borrelia testis a new test, developed in conjunction with Leicester University,which is designed to test for bacterial presence and is not dependent 2on host antibody production5. We would like to see this test assessed for routine use in Lyme disease testing in Scotland.
Tick-borne Illness Campaign Scotland; Bron https://www.facebook.com/ticscotland/
We have been notified of the outcome of the Public Petitions Committee meeting this week:
"At the meeting the Committee agreed to write to the Cabinet Secretary for Health and Sport. It also agreed to write to
Dr Cruikshank and Professor Lambert
."
It's a better outcome than the closure of the petition, which we managed to avert.
Interessant wat de bevindingen van het Schotse VWS zijn over de 'Phelix Phage Borrelia test'.

Brief van Prof Lambert - PE1662/QQ Professor John S Lambert submission of 31 October 2020; Bron https://www.parliament.scot/S5_PublicPe ... 662_QQ.pdf
I suggest the following actions be initiated and followed through to completion.
..2.Testing:
a. Review current testing strategies for tickborne infections performed within Scotland and the UK, and in parallel assess the ‘private’ tests that Scottish people are obtaining as a result of their perceived limitations of current testing.
b. Establish testing for all co-infections and improved testing for Lyme disease which does not rely on antibody responsealone (ie PCR)..
Brief van Schotse VWS - PE1662/PP Minister for Health, Sport and Wellbeing submission of 30 October 2020; Bron https://www.parliament.scot/S5_PublicPe ... 662_PP.pdf
SLDTRL is committed to investigating new testing methods and technologies and is constantly aiming to adapt and improve the service provided. However, as the NICE guidelines state, tests should only be used if they have been sufficiently validated, and this validation should include peer-reviewed published evidence on the test methodology, its relation to Lyme disease and independent reports of performance. To their knowledge, there are no other tests available that fulfil these criteria.
Een duidelijk en juist standpunt er zijn immers (nog) geen peer-reviewed gepubliceerde wetenschappelijke artikelen van de onderzoekers/wetenschappers Jinyu Shan & Martha Clockie; Bron http://phelix.info/en/about/team/ verschenen.

Louis Teulières, Tanja Mijatovic van Red Laborotaries en Biologix Center in de V.S lijken misschien te hard van stapel te lopen?

'Bacteriophage Lyme Test Offers ME/CFS Patient New Possibility 2 juni 2020 '; Bron https://www.healthrising.org/blog/2020/ ... eriophage/
I have also contacted the Chief Science Officer at RED and Phelix requesting scientific evidence backing up the Phage Test.
I have been told that as it is ongoing a patent application, they cannot publish scientific articles at the same time. They will do so when the patent is granted.
Het patent(octrooi) is (nog) niet verleend!
De patent(octrooi) aanvraag is in behandeling en zit in de onderzoeksfase. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Vr 20 Nov 2020, 15:48

Crypto-infections Conference September 26-27 september 2020
Red Labotarories - 'Neglected infections and gastrointestinal issues in patients with Lage/Persistent/Chronic Vector-Borne Infections'; Bron https://www.iddoctor.eu/docs/Crypto-Inf ... atovic.pdf
Among neglected infections, there are some that deserve more attention and investigations, like Borrelia Relapsing fevergroup, Borrelia Miyamotoi, Tularemia, Yersinia, Mycoplasma, Chlamydia, Epstein-Barr virus and Herpes viruses. Our data show that prevalence of these infections are not negligible and they should be more investigated.
- Bacteriophages could become a diagnostic tool (Patent WO2018083491A1) based on the principle that if there are phages it is because there are living bacteria; hence a phage-based test is a direct proof of an active infection.
- Phelix Charity together with Leicester University microbiology department have recently developed a Borrelia Phage-based PCR test searching for 3 major Borrelia groups: Borrelia burgdorferi sl (including B. burgdorferi ss, B. afzelii, B. garinii, B. spielmanii, etc) Borrelia miyamotoi and Relapsing fevergroup (B. recurrentis, B. hermsii, etc).
- This method is efficiently used to assess both human samples and ticks.
- Highly sensitive and specific.
- Do not generate positive signal against othe rbacterial strains.
- False positive are ruled out by sequencing.
Unexpected Results?
- This result is in line with those obtained on human samples:
- Since July 2019, over 2100 results from patients originating various countries have been obtained.
-Testing included mainly latestage/chronic patients and the aggregated data are showing 30% negative results and 70% positive among which over 60% indicated the presence of specific Borrelia miyamotoi phages.

➔For analysis of some clinical data, please see the lecture from Dr Louis Teulières

- With respect to the obtained results, a question raised: are we searching for the wrong culprit with Lyme-disease testing?
Conclusions(1)
- Seen a high prevalence of B. miyamotoi in tested ticks, further supported by similar percentages found in tested patients, one can hypothesize that the high failurerate of current two-tier screening testing, searching for B. burgdorferi sl only, might be due to the wrong testing target.
- In other words, the overall high expansion of undiagnosed Lyme disease cases world wide might be linked to the screening choice focusing only on B. burgdorferi sl and only rarely testing for B. miyamotoi while the later one seems to be much more prevalent.
- Further accumulation of data both from the patients and ticks should bring the answer to the question arewe searching for a wrong culprit.
- Searching for actual bacterial presence using phage-ased testing might pacify the debate and controversies on testing choices and late/chronic stage patients

Louis Teulières - 'Specific PCR phages tests show Borrelia miyamotoï more realistic prevalence in Europe. Covid/LD coinfection markers and shared treatments'; Bron https://www.iddoctor.eu/docs/Crypto-Inf ... Europe.pdf
Part1: Phelix Phage Borrelia detection method (Patent WO2018083491A1)
GENERAL CONCLUSIONS
1) Phages being an evidence of bacterial activity, this technology is an in-vivo amplification system for active infections. Clinicians can evaluate their treatments and discriminate the active disease from the post-lyme syndrome.
2) This is the first large scale report on prevalence of B. miyamotoi in late stages of borreliosis in Europe. Results were permitted by the high sensitivity of Phages PCR tests.
3) Borrelia phage-based PCR experience is now used to developp Bartonella spp., Rickettsia spp and other «co-infections» testing.

Our gratitude towards
-The patients associations
- R.E.D. Laboratories
- Jinyu Shan, PhD Fellow Researcher: Department of Infection, Immunity, and Inflammation, University of Leicester, LE 16 RH, UK

Louis Teulièrs en Tatjana Miyatovic zijn duidelijk de mensen van de PR en die de 'Phelix Phage Borrelia test' aan de man brengen en verkopen in Europa en in de V.S. Opmerkelijk is dat het patent(octrooi) door beiden wordt genoemd met als reden dat het een betrouwbare test is?
Het patent(octrooi) is nog niet verleend! De patent(octrooi) aanvraag is in behandeling en zit in de onderzoeksfase. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.
Zal de 'Phelix Phage Borrelia test' ook in de 'Revive Clinic Algarve'; Bron http://reviveclinicalgarve.com/our-team/ en Bron http://reviveclinicalgarve.com/for-whom/ worden ingezet bij de chronische Lyme, de me/cvs en de post Covid-19 patiënten?

Blijven de chronische Lyme patiënten in Nederland, Europa en in de V.S klachten houden en of erg ziek niet als het gevolg van Borrelia (B. burgdorferi sl) maar als het gevolg van B. miyamotoi/Relapsing fever?

Lymevereniging & Phelix Phage Borrelia test & Team Phelix Research & Development; Bron http://phelix.info/en/about/team/

Stichting Tekenbeetziekten - B. miyamotoi; Bron https://www.tekenbeetziekten.nl/borrelia-miyamotoi/
Update mei 2020
..- Redlabs in België stelt met een zogenaamde ‘fagentest’ B. miyamotoi te kunnen aantonen. De test is nog niet gevalideerd. Dit onderzoek zal binnenkort plaatsvinden op initiatief van de Lymevereniging. De test is ontwikkeld door Franse en Britse wetenschappers.
Zijn er al resultaten bekend? Heeft 60%-70% van de Nederlandse patiënten en of van de leden van de Lymevereniging
B. miyamotoi/Relapsing Fever?

Bij Red Laboratories testen veel patiënten heden en in het verleden positief op de testen voor Borrelia Miyamotoi, Tularemia, Yersinia, Mycoplasma, Chlamydia, Epstein-Barr virus en Herpes virussen en positief op de andere gebruikte testen. Dat wekt de indruk dat veel patiënten erg (dood)ziek zijn en is dat juist? Voor de patiënten is het een kostbare geschiedenis want bij het testen en het hertesten zijn de mensen een paar duizend euro kwijt.

Interessante uitspraken van Joseph J. Burrascano Jr - Making Rational Choices when Testing for Tick-Borne Diseases - Ilads 2020; Bron https://www.ilads.org/ilads-conference/ ... g-rational
Clinicians want guidance in choosing which tests to run and from which labs. This choice should be based upon results of objective validation and proficiency test results, and publications. Labs that do not provide this data should raise concerns.

Thanks to advancements in technology, testing quality has improved over the years. However, approach these new technologies cautiously if data on test accuracy is not provided.
Het geeft te denken dat de Ilads Lyme artsen in Nederland geen data of validatie en verificatie gegevens & rapportages opvragen bij Red Laboratories van de gebruikte testen.
Hetzelfde geldt voor de gebruikte 'fish test' met veel positieve uitslagen. De Ilads Lyme artsen in Nederland gebruiken de test zonder verdere technische en validatie en verificatie gegevens op te vragen bij het laboratorium in Leeuwarden; Bron https://www.lc.nl/economie/Technologie- ... 74943.html en Bron https://www.nom.nl/media/actueel/biotra ... r-plussen/
De afgelopen jaren werd het systeem ingezet om ziekteverwekkers op te sporen, bijvoorbeeld de ziekte van Lyme. ,,Vooral de chronische variant ervan, die moeilijk is te detecteren.’’
Biotrack had al enige ervaring in de medische sector. Vorig jaar was bijvoorbeeld de werking van Lyme onderzocht.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Ma 23 Nov 2020, 19:23

Biologix Center
21 november 2020
'New Discovery May Explain Treatment-Resistance in Chronic Lyme Disease'; Bron https://www.facebook.com/BiologixCenter/ en Bron https://biologixcenter.com/lyme-disease ... -disaease/
A remarkable 96% of people in this study had been misdiagnosed with Borrelia burgdorferi, and actually had a different strain of Borrelia. #Lymedisease Read why this study changes everything.
Dr. Jernigan is erg enthousiast over de 'Phelix Phage Borrelia test' van Red Laboratories. Zal het de doorbraak gaan worden voor de Lyme en de chronische Lyme patiënten in Nederland, Europa, de V.S, de hele wereld? En hebben de patiënten geen Borrelia burgdorferi (ziekte van Lyme), maar B. miyamotoi/Relapsing Fever?

Conclusion
The implications of this review are that Borrelia burgdorferi is likely not the primary culprit in many cases of chronic Lyme disease in the United States, as was previously thought. The other huge takeaway from this study is that many if not most people are not receiving the correct treatment, since the antibiotics typically used for B. burgdorferi are not the same as those used for other strains of Borrelia.

The specific strain of Borrelia bacteria cannot reliably be determined using bands on a Western Blot test. Any lab test that is focusing only upon B. burgdorferi, will miss the true diagnosis of other strains of Borrelia.

The Phelix Borrelia-Phage test is just one of a new breed of phage-based lab tests that will likely become the gold-standard of all bacterial testing. It would be advisable for anyone who suspects that they have or had Lyme disease, yet have either been told they are negative, or who have lingering symptoms to be tested again with the Phelix test.

Our view of what symptoms are typical of classic Lyme disease, based upon the B. burgdorferi model, needs to be expanded to include the symptoms that are unique to the other strains of Borrelia, as their presentation can be quite different, as well as their vectors not being always a tick.
Ruling out False-Positives and False-Negatives with Phelix Borrelia-Phage Testing
The Phelix Borrelia-Phage test is the premier, newest, most sensitive Borrelia lab test available. The Phelix test is statistically the most accurate test, as each blood sample undergoes quadruplicate real-time PCR tests for 3 different targets (B. burgdorferi sl, B. miyamotoi, Relapsing fever) for a total of 12 assessments. All positive-like samples are submitted to confirmatory sequencing to rule out false positive results. Before the Phage real-time PCRs, each sample is submitted to 2 rounds of QC to rule out false-negative results that would relate to the technical flaws: (i) to assess the quality of extracted DNA by performing low cycles actin PCR, and (ii) to assess the absence of PCR inhibitors by doing a real-time PCR for IAC (internal amplification control).
Bartonella Research Collaboration
The Biologix Center is collaborating with researchers who are working to develop phage lab tests for Bartonella and other types of microbes. The Phelix Bartonella-Phage Test is hoped to be offered before the end of 2020. If you have been diagnosed with Bartonella and would like to contribute a blood sample for the development of this new test, please let us know. Offer available only to patients of the Biologix Center who have been pre-qualified by our testing.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5515
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Di 01 Dec 2020, 20:53

Stand van zaken: 30 november 2020 - Renewal fee patent year 04; Bron https://register.epo.org/application?nu ... &tab=event
De patent(octrooi) aanvraag is in behandeling. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.

Stand van zaken: 15 september 2020 - Reply to communication from the Examining Division

Namens de wetenschappers en uitvinders Jinyu Shan & Martha Clockie en Louis Teulières heeft de gemachtigde (advocaat octrooirecht) bij de onderzoekscommissie van het European Patent Office (EPO) als voorzorgsmaatregel een voorlopig verzoek om mondelinge behandeling (oral proceedings) ingediend voor het geval dat weigering van het verzoek in elk stadium van de procedure wordt overwogen.

Overview of the procedure for the grant of a European patent (oral proceedings); Bron http://documents.epo.org/projects/babyl ... ess_en.pdf
Het is wachten op het antwoord van de onderzoekscommissie van het European Patent Office (EPO).

Er is nog geen mondelinge behandeling/video conferentie (oral proceedings) ingepland in de agenda van het European Patent Office (EPO).
Interessant is de discussie over de 'novelty' (nieuwheid); Bron https://www.epc.nl/blog/top-3-eisen-voo ... dwars-ligt van de uitvinding en wat de bevindingen van de onderzoekscommissie van het European Patent Office (EPO) zullen worden op de aanpassingen en de correcties/rectificaties (gewijzigde claims) die namens de wetenschappers en uitvinders Jinyu Shan & Martha Clockie en Louis Teulières zijn ingediend door de gemachtigde (advocaat octrooirecht) op 15 september 2020. En daarmee wel of niet kunnen voldoen aan de voorwaarden van het EPO.
Nieuwheid
Uw uitvinding moet nieuw zijn. Dat betekent dat patenten alleen worden verleend voor uitvindingen die voor de indieningsdatum van de octrooiaanvraag nog niet bij het publiek bekend waren, waar ook ter wereld.
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~


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