Zijn er ervaringen met de Phelix Phage Borrelia test?

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Roxy
Berichten: 5588
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Ma 14 Dec 2020, 15:52

Onderzoekers & wetenschappers en oprichters leden van Team Phelix Research & Development; Bron http://phelix.info/en/about/team/

Fédération Française contre les maladies vectorièlles à tiques (FFMVT)
19 oktober 2020
Persbericht - Verklaring van de Raad van Bestuur van de FFMVT; Bron https://ffmvt.org/actualites/declaratio ... e-la-ffmvt
La FFMVT exprime son profond désaccord avec les propos tenus par le Pr Christian Perronne, Vice-Président de la Fédération et Président de son Conseil scientifique, au cours de l'émission de Sud Radio du jeudi 15 octobre 2020 (l’inutilité des tests COVID19, "la majorité des PCRs sont des faux positifs", le jackpot du COVID pour le médecin, interrogation sur l’utilité du masque dans le métro, etc.). Elle considère que ceux-ci relèvent d'opinions toutes personnelles qui n'engagent en rien la FFMVT. La FFMVT tient à se démarquer sans ambigüité de ces déclarations publiques et d'un engagement ouvertement exprimé au profit d’une association BonSens aux valeurs étrangères à l’éthique de la FFMVT.

La Fédération rappelle qu'elle n'a qu'un engagement, à savoir, œuvrer scientifiquement pour définir les évolutions souhaitables dans la prise en charge des maladies vectorielles à tiques, pour défendre les droits des malades présentant une telle pathologie, dans une démarche de démocratie sanitaire, avec une étroite collaboration entre malades et professionnels de santé, et en dehors de toute considération non médicale.

Par ailleurs, les nombreuses occupations récentes du Pr Christian Perronne sur des sujets extérieurs à la FFMVT l’ont rendu largement indisponible au travail effectué par notre Fédération et en particulier au bon fonctionnement indispensable de son Conseil Scientifique, ainsi qu’il l’a lui-même reconnu.

Lors de sa réunion du mercredi 14 octobre, le Conseil d’Administration a donc demandé au Pr. Christian Perronne de rapidement clarifier sa position et de faire des choix.

Malgré des tentatives répétées de renouer le dialogue, et devant une absence de réponse sérieuse à la question posée, le Pr. Christian Perronne est donc démis de ses fonctions de Vice-Président de la Fédération et de Président du Conseil scientifique.

Le C.A. de la FFMVT dans sa majorité, lundi 19 octobre 2020, à 23h00.
BFMTV
20 oktober 2020
Christian Perronne démis de ses fonctions au sein de la Fédération sur la maladie de Lyme en raison de propos complotistes; Bron https://www.bfmtv.com/sante/christian-p ... 00179.html

Kritisch artikel van wetenschapsjournalist Schneider
26 oktober 2020
Christian Perronne and other Chronic Lymericks; Bron https://forbetterscience.com/2020/10/26 ... lymericks/
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5588
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Di 15 Dec 2020, 15:30

The Scottish Parliament
Public Petitions Committee Meeting
Date: 22nd Meeting, Wednesday 16 December 2020; Bron https://www.parliament.scot/parliamenta ... ittee.aspx en Bron https://www.parliament.scot/S5_PublicPe ... _16Dec.pdf
Consideration of continued petitions: The Committee will consider the following continued petitions:
..PE1662: Improve treatment for patients with Lyme Disease and associated tick-borne diseases..

PE01662: Petition: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases
Janey Cringean (Lyme Resource Centre Scotland (LRC); Bron https://www.lymeresourcecentre.com/abou ... m-scotland) and Lorraine Murray on behalf of Tick-borne Illness Campaign Scotland; Bron https://www.parliament.scot/GettingInvo ... ymedisease

Tick-borne Illness Campaign Scotland; Bron http://www.ticscotland.org.uk/

Tick-borne Illness Campaign Scotland; Bron https://www.facebook.com/ticscotland/
7 december 2020: 'Our Scottish Lyme petition will be considered again by the Petitions Committee on Wednesday 16th December. It will be able to be viewed live online. We will know exact details on Friday.'

6 december 2020 - PE1662/SS Petitioner submission of 6 December 2020; Bron https://www.parliament.scot/S5_PublicPe ... 662_SS.pdf
As stated in previous submissions, only 5 of the 300 known species of Borrelia are currently tested for in Scotland. Borrelia miyamotoi is known to exist in Scotland and scientists believe it is responsible for a significant proportion of illness*5. SLDTRL’s test for Borrelia miyamotoi is not ISO accredited or routinely used, leaving many patients undiagnosed. This may also be the case for other recently discovered species. There is also strong evidence that many Lyme disease patients are also infected with tick-borne co-infections, but SLDTRL hasno ISO accredited tests any co-infections.
*5 is verwijzing naar '2nd European Crypto-Infections Conference, Dublin, Ireland, 26th-27th Sept 2020'; Bron https://www.lymeresourcecentre.com/rese ... rypto-2020 Agenda; Bron https://www.lymeresourcecentre.com/syst ... v%2035.pdf

6 oktober 2020 - PE1662/OO Petitioner submission of 6 October 2020I; Bron http://www.parliament.scot/S5_PublicPet ... 662_OO.pdf
The Phelix Phage Borrelia test is a new test, developed in conjunction with Leicester University,which is designed to test for bacterial presence and is not dependent 2on host antibody production5. We would like to see this test assessed for routine use in Lyme disease testing in Scotland.

Brief van Schotse VWS - PE1662/PP Minister for Health, Sport and Wellbeing submission of 30 October 2020; Bron https://www.parliament.scot/S5_PublicPe ... 662_PP.pdf
SLDTRL is committed to investigating new testing methods and technologies and is constantly aiming to adapt and improve the service provided. However, as the NICE guidelines state, tests should only be used if they have been sufficiently validated, and this validation should include peer-reviewed published evidence on the test methodology, its relation to Lyme disease and independent reports of performance. To their knowledge, there are no other tests available that fulfil these criteria.
MedRxiv
4 december 2020
'Targeting multicopy prophage genes for the differential diagnosis of Lyme disease' by Jinyu Shan, Ying Jia, Louis Teulieres, Faizal Patel, Martha Clokie (preprint(!); Bron https://www.medrxiv.org/content/what-un ... d-preprint); openbare Bron Phelix (Research Group) https://twitter.com/phelix_rd en openbare Bron; https://twitter.com/Jinyu_Shan en Bron https://www.medrxiv.org/content/10.1101 ... 20241687v1 en PDF van het volledige artikel; Bron https://www.medrxiv.org/content/10.1101 ... 1.full.pdf
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

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Roxy
Berichten: 5588
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Wo 13 Jan 2021, 18:03

Stand van zaken
European Patent Bulletin 02|2021 13.01.2021; Bron https://www.epo.org/searching-for-paten ... nload.html
(11) 3 535 412 (51) C12Q 1/689
C12Q 1/6888
G01N 33/569
(54) - Phage-based detection of Borreliosis and means therfor
C12Q 1/689 - EPO; Bron https://www.cooperativepatentclassifica ... e-C12Q.pdf en Bron https://www.cooperativepatentclassifica ... n-C12Q.pdf

Stand van zaken; Bron https://register.epo.org/application?nu ... &tab=event
11 december 2020 Change - classification published on 13.01.2021 [2021/02]
11 december 2020 Change - classification published on 13.01.2021 [2021/02]
11 december 2020 Change - English title published on 13.01.2021 [2021/02]

European Patent Bulletin 37|2019 11.09.2019; Bron https://www.epo.org/searching-for-paten ... nload.html
(54)- Phagenbasierter nachweis von Borreliose und mittel dafür
- Phage-based detection of Borreliosis and means therefor
- Détection de Borréliose sur la base de Phages et moyens associés
European Patent Office (EPO): 'Phage-Based detection of Borreliosis and means therefor' patentnr. WO2018083491A1 (detection method) - EP3535412; Bron https://www.epo.org/
De patent(octrooi) aanvraag is in behandeling. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.

European Patent Office (EPO): Overview of the procedure for the grant of a European patent; Bron http://documents.epo.org/projects/babyl ... ess_en.pdf
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~

Gebruikersavatar
Roxy
Berichten: 5588
Lid geworden op: Wo 29 Okt 2014, 12:14

Re: Zijn er ervaringen met de Phelix Phage Borrelia test?

Berichtdoor Roxy » Za 23 Jan 2021, 16:55

Stand van zaken; Bron https://register.epo.org/application?nu ... &tab=event

Stand van zaken: 22 januari 2021 - Communication about intention to grant a European patent

De onderzoekscommissie van de European Patent Office (EPO) heeft een reactie gegeven op de ontvangen aanpassingen en de correcties/rectifcaties (gewijzigde claims) die namens de wetenschappers en uitvinders Jinyu Shan & Martha Clockie en Louis Teulières zijn ingediend door de gemachtigde (advocaat octrooirecht).

De onderzoekers zijn uitgenodigd om binnen een niet verlengbare periode van 4 maanden te reageren om of de tekst goed te keuren en of de gegevens te verifiëren.
De gestelde claims van de onderzoekers geven niet de aanwezigheid van de faag aan.

European Patent Office (EPO): 'Phage-Based detection of Borreliosis and means therefor' patentnr. WO2018083491A1 (detection method) - EP3535412; Bron https://www.epo.org/
De patent(octrooi) aanvraag is in behandeling. Abstract WO2018083491A1 - EP3535412; Bron https://register.epo.org/application?nu ... ab=doclist Het patent(octrooi) kan worden verleend of worden afgewezen.

European Patent Office (EPO): Overview of the procedure for the grant of a European patent; Bron http://documents.epo.org/projects/babyl ... ess_en.pdf
~ I may not be there yet, but I'm closer than I was yesterday ~
~ The people who are meant to be in your life are the ones who know how to gently wait for you to heal ~
~ So encourage each other and build each other up - Positive connections ~


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