Concept van de nieuwe IDSA richtlijnen voor Lyme beschikbaar voor publiekelijk commentaar in Amerika

[VerlorengezondheidM]

Draft of new IDSA Lyme guidelines available for public comment

The Infectious Diseases Society of America (IDSA) has released a draft of its new Lyme disease treatment guidelines. You can access a copy of the document on the IDSA website and provide public comment between now and August 10.

The website states, “We are looking for feedback from not only physicians and healthcare professionals, but also individuals affected by Lyme disease, such as patients, care givers, patient organization members, advocates, and researchers. The drafts and comment form will be available for 45 days.”

To view the draft guidelines, supplementary materials, and submit comments, please see below.

2019 Draft Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease

2019 Draft Supplement Materials for the Prevention, Diagnosis and Treatment of Lyme Disease

Deadline for Public Comments: August 10, 2019, 5PM ET

The 2006 IDSA Lyme guidelines were a serious point of contention between the Lyme community and the medical establishment. Based on the guidelines, patients were often denied any Lyme treatment beyond a short course of antibiotics. And doctors who did not strictly adhere to the guidelines often found themselves facing disciplinary action from their state medical boards.

The draft document is 100 pages long, with about 200 pages of supplemental material. LymeDisease.org is currently analyzing this and will share our reactions to it in the future.

Bron: Lymedisease.org, lees meer

Klik op de bovenstaande link om uiteindelijk de documentatie van het concept van de nieuwe IDSA richtlijnen voor Lyme te kunnen lezen.

[VerlorengezondheidM]

UOS2_claim_references_3 (1).pdf

12 of 14 IDSA Lyme guidelines
authors have conflicts of interest.
(00:43:29;04)

(208.71 KiB) 525 keer gedownload

[VerlorengezondheidM]

Lyme treatment protocol corruption

Bron: YouTube, kijk en luister meer

[Sproetje]

https://www.lymedisease.org/idsa-extends-lyme-deadline/

[…..]
As Dr. Judy Stone, writing for Forbes.com, noted recently:

The IDSA has made review more difficult by only offering the draft online. It is “protected,” so one cannot even cut and paste lines into a reply or commentary, nor highlight passages for review. Nor can one search the document by keyword. Forbes and I have asked for a pdf that can be annotated, to make review and comment easier, and they have refused. Their refusal makes me feel they really don’t want people to comment on their 81-page draft and 203 page supplement.
[…..]

[VerlorengezondheidM]

Vooral als een blind paard achter de IDSA richtlijnen en IDSA artsen aan blijven rennen, zie onderstaande

TOUCHED BY LYME: IDSA guidelines deny Lyme diagnosis to most of the USA

Question: why does an organization that is supposedly set up to cure sick people—the Infectious Diseases Society of America—spend so much time and effort to deny access to proper medical care to people unfortunate enough to contract Lyme disease?

“Lucky” endemic states?

Yet, even if you are in one of the “lucky” endemic states and thus can get diagnosed, your prospects aren’t much better.

The guidelines allow you only a short course of antibiotics, offer no re-treatment options if you remain symptomatic, and make no allowance for clinical judgement on the part of individual doctors. (Doesn’t the IDSA even trust its own members?)

Why does all this matter so much? Because although the IDSA claims these are just “recommendations,” in fact, its guidelines are often viewed as mandates by physicians, state health officials, medical boards, insurance companies, and the courts. The 2006 IDSA Lyme guidelines have been used to deny treatment, insurance coverage, and medical licenses for years.

They’ve even been adopted by health departments in other countries, making it hard for people with Lyme to get diagnosed in those places, too.

Bottom line: these guidelines will have a devastating impact throughout the world. By making it so difficult for people to get diagnosed in the early acute phase of the disease—when the chance of successful treatment is so much greater—the IDSA condemns huge numbers of people to lifelong health problems.

And, if you think the guidelines offer any help for diagnosing late Lyme disease? Fuggedabout it!

The IDSA has no use for “non-specific” symptoms of Lyme—such as fatigue, pain or cognitive impairment—which are the kind of symptoms folks with late Lyme tend to have. The guidelines simply disregard them.

Bron: Lymedisease.org, lees meer

[Sproetje]

Finally, easier way to comment on IDSA guidelines

https://www.lymedisease.org/idsa-remove ... ommenting/

The Infectious Diseases Society of America (IDSA) has finally lowered yet another barrier to commenting on its new Lyme treatment guidelines. Let me put this in context:
In late June, the IDSA published a draft of the guidelines on its website and went through the motions of “inviting” public comment before August 10.
But it seemed an insincere invitation at best. First of all, they “protected” the document, making it impossible to copy, download, or search for key phrases on almost 300 pages of material. Hence, you could only view it online, with no easy way to take notes.

(When Lyme patients and even Forbes magazine asked for an easier way to read the document, the IDSA said no.)

Then, on August 9, the IDSA seemed to have a change of heart. .....

At that point, the IDSA removed the online protections from the guidelines, making the document downloadable and searchable. And they extended the deadline to September 9.

Now, the public is invited to email comments to practiceguidelines@idsociety.org.

Over the past two months, Lorraine Johnson , CEO of LymeDisease.org, and Dr. Betty Maloney, of the International Lyme and Associated Diseases Society (ILADS), have analyzed the IDSA guidelines and prepared a 58-page rebuttal. They submitted this before the original deadline.
More than 40 patient advocacy groups have endorsed these comments, including the national Lyme Disease Association, the Bay Area Lyme Foundation, and the Canadian Lyme Disease Foundation. Together, the groups have formed the “Ad Hoc Patient and Physician Coalition.”
.....

[VerlorengezondheidM]

IDSA guidelines process excluded chronic Lyme patients and their physicians

It is unacceptable that this panel does not have any meaningful representation of the interests of patients with persistent Lyme disease given that these patients will suffer the consequences of under-diagnosis, under-treatment, and failure to retreat under these guidelines.

this panel does not include physicians who treat chronic Lyme disease – another population that will be deeply affected by these guidelines.

Bron: Lymedisease.org, lees meer

[Henriëtte]

The Financial Implications of a Well-Hidden and Ignored Chronic Lyme Disease Pandemic;

In 2006, the IDSA treatment guidelines development process was subjected to an antitrust investigation by the Connecticut Attorney General [49], which found that many IDSA treatment panel members had conflicts of interest [50]. In November 2017, another antitrust lawsuit (Civil Action No 17-cv-190) [51,52] was directed at the IDSA along with several large insurance companies in the USA and several IDSA medical doctors, in a federal court in Texarkana, Texas in the USA. The allegations concern violations of the Racketeer Influenced and Corrupt Organizations (RICO) Act and the Sherman Antitrust Act. According to the Agency for Healthcare Research and Quality (AHRQ), which is part of the U.S. Department of Health and Human Services, 86% of health care costs in 2010 in the USA came from patients with one or more chronic conditions [53]. The concern is that because Intravenous (IV) antibiotic treatment for people with chronic Lyme disease costs so much money, insurance companies in the USA may gain by colluding with the IDSA to ensure chronic Lyme disease is not classified as a real disease caused by bacteria, so that IV antibiotic treatment can be denied.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5872223/

Henriëtte

[Sproetje]

Protesting IDSA Lyme guidelines: “Bad policy in the US affects the whole world.”

https://www.lymedisease.org/58-orgs-end ... -comments/

[Sproetje]

Dutch Lyme group joins international protest of IDSA guidelines

https://www.lymedisease.org/dutch-lyme-association/

Lymevereniging, known in English as the Dutch Lyme Association, has endorsed the Ad Hoc Patient and Physician Coalition’s rebuttal to the IDSA’s Lyme treatment guidelines.
There are now 67 organizations in the coalition, representing six countries: the US, Canada, Australia, the UK, France and the Netherlands.