Enquête: schatting van het totaal aantal chronische Lyme patiënten in Nederland, wat denken jullie?

[VerlorengezondheidM]

Als deze voormalig internist in 2010 al spreekt over honderdduizenden Nederlanders die lijden aan de ziekte van Lyme en co-infecties zonder dat ze het weten, lijkt mij dat dat in 2018 alleen maar erger en meer is geworden, enfin.

Laten wij hopen dat ik ongelijk heb oké?

'God is watching'

[VerlorengezondheidM]

Naar aanleiding van een eerdere discussie heb ik de schalen van de POLL omhoog bijgesteld zonder dat opnieuw hoeft te worden gestemd (dat mag overigens wel!)

Let uw stem horen a.u.b.!

Alvast bedankt.

Groetjes VGM

[VerlorengezondheidM]

In Canada bleek de registratie van Lyme, bij nader inzien toch niet zo goed te verlopen

Study: much more Lyme disease in Canada than officials acknowledge

A new study of Lyme disease in Canada suggests that government statistics severely under-detect and under-report human cases of the illness in that country.

C0-authored by Mount Allison University biology professor Vett Lloyd and Ralph Hawkins, MD, clinical associate professor at the University of Calgary’s Cumming School of Medicine, the findings have been published in the peer-reviewed journal Healthcare.

Pointing out that Lyme is a contentious disease, Lloyd says no one knows how many Canadians are infected.

“There has been an enormous discrepancy between the experiences of people in affected communities throughout Canada and the official numbers of those affected with Lyme disease,” Lloyd said. “If everyone is working from the same baseline information, we can perhaps start to move forward to dealing with this disease.”

Lloyd and Hawkins analyzed three independent data sets–U.S. public health data, Canadian public health data, and the number of dogs with a Lyme disease infection–to generate an estimate of the true number of cases of Lyme disease in Canada.

The province of New Brunswick, where Lloyd’s lab is located and where Lyme disease is emerging, was used as a case study, but the results are applicable across Canada.

Their results showed an under-detection of Lyme disease across all data sets. The pair estimate only between three and four per cent of cases are being documented in Canada.

“As a doctor, what worries me the most about this work is the fate of those people who are infected but not diagnosed,” says Hawkins, site lead for General Internal Medicine at Alberta Health Service’s South Health Campus, in Calgary. “We know that the outcome for untreated Lyme disease patients is not good.”

Lloyd has been studying ticks and Lyme disease over the past five years and contracted Lyme disease herself when bitten by a tick in her yard. Hawkins treats Lyme patients from across Canada.

Lloyd and Hawkins say that addressing discrepancies around the number of people affected by Lyme disease is a beginning step in helping those affected obtain treatment.

This study shows the value of independent research and the need to address the experiences of all Canadians with the disease, not just the minority that are captured by conventional Canadian testing.

Bron: Lymedisease.org

[VerlorengezondheidM]

Evaluating polymicrobial immune responses in patients suffering from tick-borne diseases

Kunal Garg, Leena Meriläinen, […]Leona Gilbert

Introduction

Tick-borne diseases (TBDs) have become a global public health challenge and will affect over 35% of the global population by 2050 1. The most common tick-borne bacteria are from the Borrelia burgdorferi sensu lato (s.l.) group. However, ticks can also transmit co-infections like Babesia spp.2, Bartonella spp.3, Brucella spp.4,5,6,7,8, Ehrlichia spp.9, Rickettsia spp.10,11, and tick-borne encephalitis virus12,13,14. In Europe and North America, 4–60% of patients with Lyme disease (LD) were co-infected with Babesia, Anaplasma, or Rickettsia11,15,16. Evidence from mouse and human studies indicate that pathogenesis by various tick-borne associated microbes15,16,17 may cause immune dysfunction and alter, enhance the severity, or suppress the course of infection due to the increased microbial burden18,19,20,21,22. As a consequence of extensive exposure to tick-borne infections15,16,17, patients may develop a weakened immune system22,23, and present evidence of opportunistic infections such as Chlamydia spp.24,25,26,27, Coxsackievirus28, Cytomegalovirus29, Epstein-Barr virus27,29, Human parvovirus B19 24, and Mycoplasma spp.30,31. In addition to tick-borne co-infections and non-tick-borne opportunistic infections, pleomorphic Borrelia persistent forms may induce distinct immune responses in patients by having different antigenic properties compared to typical spirochetes32,33,34,35. Nonetheless, current LD diagnostic tools do not include Borrelia persistent forms, tick-borne co-infections, and non-tick-borne opportunistic infections.

Bron: Nature.com, lees meer

[VerlorengezondheidM]

When you combine this with Dr. Ralph Hawkins and Dr. Vett Lloyd’s recently published paper showing over 90% of Canadians infected with Lyme are being missed, it illustrates an alarming growing crisis in Canada and globally:

https://www.mdpi.com/2227-9032/6/4/125

Under-Detection of Lyme Disease in Canada

Bron: https://www.change.org/p/minister-petit ... u/23911293

[VerlorengezondheidM]

Lyme Fact Friday #3 Lyme vs Measales Statistics

Bron: YouTube, kijk en luister, meer

[VerlorengezondheidM]

Wat heeft 45 jaar fixatie op acute Lyme en acute co-infecties ons (de Lyme community) netto gezien opgeleverd behalve een hele berg ongediagnostiseerde, niet erkende, onbehandelde, statusloze Nederlandse chronische Lyme en co-infectie patiënten?

Welke andere ernstige potentieel dodelijke ziekte gaat terug in de tijd?

1983.....

FAILURE RATES OF >50% ARE BEING REPORTED….CLEARLY, ALTERNATIVE THERAPIES ARE NEEDED. CLEARLY. NOT “YOU’RE NUTS; GO AWAY.” Because treatment fails half the time. Say Dattwyler & Luft, Allen Steere “Regardless of the antibiotic agent given, nearly half of patients still experienced minor late complications-recurrent episodes of headache or pain in joints, tendons, bursae, or muscles, often accompanied by lethargy [19].” (1983), and Charles Chiu (UCSF, 2016).

Bron: https://badlymeattitude.com/2017/05/14/steere/

[TheoA]

Wat heeft 45 jaar fixatie op acute Lyme en acute co-infecties ons (de Lyme community) netto gezien opgeleverd behalve een hele berg ongediagnostiseerde, niet erkende, onbehandelde, statusloze Nederlandse chronische Lyme en co-infectie patiënten?

Welke andere ernstige potentieel dodelijke ziekte gaat terug in de tijd?

1983.....

FAILURE RATES OF >50% ARE BEING REPORTED….CLEARLY, ALTERNATIVE THERAPIES ARE NEEDED. CLEARLY. NOT “YOU’RE NUTS; GO AWAY.” Because treatment fails half the time. Say Dattwyler & Luft, Allen Steere “Regardless of the antibiotic agent given, nearly half of patients still experienced minor late complications-recurrent episodes of headache or pain in joints, tendons, bursae, or muscles, often accompanied by lethargy [19].” (1983), and Charles Chiu (UCSF, 2016).

Bron: https://badlymeattitude.com/2017/05/14/steere/

Mooi sarcastisch stukje over Alan Steere.
Maar laten we niet vergeten dat we in Nederland ook een Alan Steere hebben.
Zijn naam: Joppe Hovius.

[VerlorengezondheidM]

In 2016 waren er: 8,8 miljoen Nederlanders met een of meerdere chronische ziekten, dit komt overeen met 52% van de totale Nederlandse bevolking.

Bron: Volksgezondheidenzorg

5 Diseases Lyme Is Often Mistaken For

1 – Multiple Sclerosis
2 – Fibromyalgia
3 – Chronic Fatigue Syndrome
4 – Autoimmune Disease
5 – Depression

Bron: BCA-clinic, lees meer

[VerlorengezondheidM]

Evaluation of the ELISA (First line screening test for Lyme) showed that only 13-16% of patients with a bulls-eye rash have positive serology in the first three weeks after onset of symptoms and only increases to 27% 3-6 weeks after onset of illness.

Because of the low sensitivity of the test the diagnosis of Lyme disease in endemic areas should depend primarily on the clinical presentation of the patient.

___________________________________


So for 31 years we have been using a useless first line laboratory test to screen for a disease that is destroying lives, ending careers while leaving the patient in financial ruin.

How many Lyme patients have been harmed by these faulty/misleading antibody tests and told they do not have Lyme disease? The US Centers for Disease Control is 100% responsible for this epic failure.

Bron: https://www.change.org/p/the-us-senate- ... u/24236509