Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Klopt de officiële definitie van Lyme nog wel?

Nee; Lyme en/of co-infecties of Lyme M.S.I.D.S zou een zuiverdere naam zijn en ook meer recht doen aan de ernst en complexiteit van de ziekte.
3
75%
Ja, de definitie van Lyme zoals deze nu officieel en bindend vaststaat is prima in orde.
0
Geen stemmen
Geen mening.
1
25%
 
Totaal aantal stemmen: 4

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VerlorengezondheidM
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Lid geworden op: Za 19 Sep 2015, 23:59
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Wo 12 Dec 2018, 00:40

Ischemic Stroke: Do Not Forget Lyme Neuroborreliosis.

Bron: https://madisonarealymesupportgroup.com ... rreliosis/
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Zo 16 Dec 2018, 11:51

Als ik deze presentatie bekijk van dr. Leona Gilbert geloof ik niet dat de huidige, al dan niet bewust beperkt gehouden definitie van Lyme nog kloppend is.

Waarom het wiel telkens opnieuw uitvinden in Nederland?
Laatst gewijzigd door VerlorengezondheidM op Za 15 Jun 2019, 18:42, 1 keer totaal gewijzigd.
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Do 03 Jan 2019, 15:05

Study Shows Lyme/MSIDS Patients Infected With Many Pathogens and Explains Why We Are So Sick


But there is another important point.

According to this review, 83% of all commercial tests focus only on Lyme (borrelia), despite the fact we are infected with more than one microbe. The review also states it takes 11 different visits to 11 different doctors, utilizing 11 different tests to be properly diagnosed. https://www.news-medical.net/news/20181 ... ature.aspx?

This is huge. Please spread the word.




Bron: https://madisonarealymesupportgroup.com ... e-so-sick/
Laatst gewijzigd door VerlorengezondheidM op Vr 18 Jan 2019, 12:07, 1 keer totaal gewijzigd.
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

Henriëtte
Berichten: 1640
Lid geworden op: Di 19 Mei 2015, 10:05

Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor Henriëtte » Do 17 Jan 2019, 17:34

Does chronic Lyme exist?

Neuroborreliosis vs. borreliosis

It is important to note that there is a difference between chronic Lyme disease and chronic neuroborreliosis. Chronic neuroborreliosis only refers to manifestations of an illness in the nervous system. Here, it is important to consider that all parts of the nervous system can be affected (in various degrees), such as the central nervous system, the cranial nerves, the peripheral and in all probability the autonomous nerve system. For the latter, the necessary literature is yet missing but why should borrelias spare this part of the nervous system or be “unable” to reach it? Patients might describe varying pain appearing in various locations and intensities throughout the nervous system, which can be considered astonishing or even “crazy” and represent a real challenge for both the patient and the doctor. As a result, the main reaction is to diagnose psychic illnesses, anxiety disorders or other illnesses (e.g. rheumatism, etc.). Is a chronic infection, therefore, not possible?

Of course, we consider the exclusion of any other possible illnesses essential, as you may read in the following chapter. Still, we recommend not to rule out a chronic infection right away.

The general chronic type of process (or “late form”) of the Lyme disease refers to a multisystem disorder that goes far beyond the nervous system. It also affects other organs and organ systems. This is to say that neuroborreliosis does not necessarily mean borreliosis (or Lyme disease) in general; it is not correct to rule out a Lyme diagnosis just because the patient does not show signs of a neuroborreliosis. It is also known that different borrelia strains prefer different organ systems and, therefore, trigger different symptoms.

We do not know how recurrent the general chronic Lyme disease (or borreliosis) is and we do not wish to speculate. In turn, we do not know either how recurrent the acute and chronic neuroborreliosis are. We do not know if this would give us a better idea if more tests were carried out and if the test procedures for antibodies were more sensitive (see: Determination of Antibodies). Besides, there might be many borrelia strains that we have not identified yet or that cannot be detected (see: General Information). It does not alter treatment in each particular case.

Nonetheless, we believe that we should consider a possibility of chronic progression of Lyme disease in each individual case, even if the statistics would indicate that it is rare.


http://www.bca-clinic.de/our-opinion-st ... ase-exist/

Henriëtte

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VerlorengezondheidM
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Vr 18 Jan 2019, 11:49

2006...

Is Lyme disease always poly microbial?--The jigsaw hypothesis.

Abstract

Lyme disease is considered to be caused by Borrelia species of bacteria but slowly evidence is accumulating which suggests that Lyme disease is a far more complex condition than Borreliosis alone. This hypothesis suggests that it may be more appropriate to regard Lyme disease as a tick borne disease complex. Over recent years numerous different microbes have been found in ticks which are known to be zoonotic and can coinfect the human host. The hypothesis suggests that multiple coinfections are invariably present in the clinical syndromes associated with Lyme disease and it is suggested that these act synergistically in complex ways. It may be that patterns of coinfection and host factors are the main determinants of the variable clinical features of Lyme disease rather than Borrelia types. An analogy with a jigsaw puzzle is presented with pieces representing Borreliae, coinfections and host factors. It is suggested that many pieces of the puzzle are missing and our knowledge of how the pieces fit together is rudimentary. It is hoped that the hypothesis will help our understanding of this complex, enigmatic condition.


Bron: NCBI
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
Berichten: 1965
Lid geworden op: Za 19 Sep 2015, 23:59
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Zo 03 Feb 2019, 07:29

Ziekte van Lyme, een veelkoppig monster? “The great imitator” Deel 2

Een introductie in Lyme en geassocieerde door teken overgebrachte ziekten in de 21e eeuw.

Richard Horowitz


Horowitz introduceert Lyme als “The great imitator”: Lyme is geen eenduidige ziekte, de oorzaken (verwekkers en andere) zijn multifactorieel, de symptomen en ziekteaspecten zijn dus ook zeer wisselend. Zo kan een ‘zomergriepje’ Lyme zijn, waarbij de symptomen zich pas 3 weken later manifesteren. Slechts een klein percentage van de patiënten merkt de tekenbeet op, en de kenmerkende ‘erythema migrans’ komt in nog niet de helft van de gevallen voor (en kan ook door andere infecties veroorzaakt worden). Deze kan overigens ook andere vormen hebben.

Als de acute infectie niet opgeruimd kan worden leidt dit daarom tot chronische ziekten, en vaak MSIDS (Multiple System Infectious Disease Syndrome), waarbij de infectie zich in het ganse lichaam verspreid heeft, en er veel zwaarder moet behandeld worden.

Bron: https://sciencefornatureandhealth.wordp ... or-deel-2/

In aanvulling op bovenstaande, Dr. Daniel Cameron, zie onderstaande bijlage.


lyme-disease-no-longer-fits-the-one-microbe-one-disease-germ-theory.pdf
Lyme disease no longer fits the ‘one microbe, one disease Germ
Theory’
(14.96 KiB) 20 keer gedownload
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
Berichten: 1965
Lid geworden op: Za 19 Sep 2015, 23:59
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Vr 01 Mar 2019, 01:05

Lyme Disease is the New AIDS

Chronic Lyme is a deeply complex, multi-system, neurological, AIDS-like infectious illness that evades and destroys the immune system, and infects every organ, muscle, tissue and cell of the body, including the brain, heart and nervous system. (Read: it’s some serious shit.)

And unfortunately, Lyme is no longer just “Lyme.” In addition to borrelia burgdorferi bacteria, ticks are host to all sorts of co-infections that can be simultaneously injected into your bloodstream with one small bite, seriously disarming your immune system and severely complicating your treatment prognosis. Some prefer the term MSIDS (Multiple Systemic Infectious Diseases Syndrome) because it more accurately describes the incredibly complex nature of Lyme that is so very difficult to treat. Instead of having one serious infection, patients have an average of 7 or more.

And yet this disease (or more accurately, collection of diseases) is systematically ignored and denied by the CDC, the IDSA, the medical community, medical academia, the insurance industry, and society. Despite more than 700 peer-reviewed journal articles proving otherwise.


Bron: https://lindseyslymelife.wordpress.com/ ... -new-aids/
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
Berichten: 1965
Lid geworden op: Za 19 Sep 2015, 23:59
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Wo 27 Mar 2019, 23:52

Arthritis, nerve pain and chronic fatigue: my life with Lyme disease

James Delingpole

Testing for Lyme is complicated and expensive. The basic Elisa test used by the NHS is useless because it produces so many false negatives.

We know, for example, that it’s a cocktail of infections (not just Borrelia, but microbes such as Bartonella, Mycoplasma, Chlamydia, as well as the Epstein-Barr virus) which overwhelm the immune system in a way that individually they might not.


Bron: Spectator, lees meer
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

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VerlorengezondheidM
Berichten: 1965
Lid geworden op: Za 19 Sep 2015, 23:59
Locatie: Tilburg
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Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor VerlorengezondheidM » Wo 08 Mei 2019, 04:41

Is the Sky Truly Going to Fall For Patients With the ‘Untreatable’ Form of Lyme Disease?

Lyme disease, around since the beginning of time, was “discovered” over 40 years ago by William Burgdorferi, but since then research has been scant and controlled by a highly vested group of individuals with patents on everything from test kits and vaccines, to other metabolomics (3). There are currently two lawsuits against the Centers of Disease Control (CDC) for the mishandling (4,5). The CDC completely ignores credible animal and foreign studies, continues to fixate on the acute phase, only supports its own research, and is run by what many call, “The Cabal.”

Just last year, Garg et al. stated in their groundbreaking paper, “Our findings recognize that microbial infections in patients suffering from TBDs (tick borne diseases) do not follow the one microbe, one disease Germ Theory as 65% of the TBD patients produce immune responses to various microbes” (6). This polymicrobial aspect is completely ignored by the CDC/IDSA, yet research has shown patients that are infected with numerous pathogens have more severe disease of longer duration, not to mention the need for different medications for a longer period of time due to the stealthy nature of the pathogens but also due to immune suppression (7).

Garg et al. also highlighted the fact that borrelia is pleomorphic, which simply means that it has the ability to shape-shift when it feels threatened (6). Pleomorphism is also completely denied by the CDC. There are essentially four forms borrelia can take: spirochete, cell wall, non-cell wall (cyst or dormant form), and biofilm (a protective colony). At least two studies to date demonstrate that the CDC’s mono-therapy of doxycycline may actually push borrelia into the non-cell wall/dormant form to reemerge later when conditions are opportune (8,9). This could very well cause or exacerbate brain diseases such as Alzheimer’s, dementia, ALS, Parkinson’s, and many others (10). Patients have been misdiagnosed with these diseases only to find out much later that they are in fact infected with Lyme and/or the other pathogens that come with it (11). Once they start proper antimicrobial treatment effectively dealing with all the pathogens, these symptoms disappear altogether or improve dramatically.

Bron: https://madisonarealymesupportgroup.com ... e-disease/

P. S. : CDC = Amerikaanse RIVM
Lyme Test Negative?
It Still May Be Lyme Disease!

Na 19 jaar onbehandeld rondlopen met een klinisch ziektebeeld: Chronische Lyme, Q-koorts, Bartonella, Babesia, Anaplasma, Chlamydia, Mycoplasma, Rickettsia, Yersinia, Coxsackie A16+ B, HHV-6.

Henriëtte
Berichten: 1640
Lid geworden op: Di 19 Mei 2015, 10:05

Re: Klopt de huidige, officiële definitie van (chronische!) Lyme nog wel?

Berichtdoor Henriëtte » Za 15 Jun 2019, 13:19

Chronische Spätform der Borreliose?

BCA-clinic

Chronische Spätform der Borreliose?

In Fachkreisen ist anerkannt, dass es eine chronische Verlaufsform der Borreliose gibt. Wie häufig dieses Krankheitsbild auftritt, ist derzeit nicht bekannt. Nach neuesten Untersuchungen gehen wir in Deutschland von bis zu 100.000 und in den USA von bis zu 300.000 Neuerkrankungen aus.

Was aber ist der Unterschied zwischen:

Der allgemeinen chronischen Verlaufsform der Borreliose?
Der chronischen Neuroborreliose?

Bei der chronischen Neuroborreliose manifestiert sich die Erkrankung ausschließlich im Nervensystem, jedoch nicht in anderen Organsystemen. Sämtliche Teile des Nervensystems können dabei unterschiedlich stark betroffen sein. Dies sind das zentrale Nervensystem, die Hirnnerven, das periphere und das vegetative Nervensystem. Patienten haben daher häufig wechselnde Beschwerden in unterschiedlicher Intensität.

Gerade deswegen erhalten die Patienten oft die Diagnose, sie seien psychisch erkrankt. An eine Differentialdiagnose für chronisch Infektionen wird selten gedacht.

Die allgemeine chronische Verlaufsform (Spätform) bezeichnet wiederum die Multisystem-Erkrankung, die das Nervensystem und andere Organsysteme betrifft. Es ist nachgewiesen, dass verschiedene Borrelienstämme unterschiedliche Organsysteme „bevorzugen“ und damit auch andere Symptome verursachen können.


https://www.bca-clinic.de/klinik/zecken ... orreliose/

Henriëtte


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